Principal Investigator, Real World Evidence
ALS Therapy Development Institute
Danielle Boyce Principal Investigator, Real World Evidence at ALS Therapy Development Institute (ALS TDI). She is also on faculty at Tufts University and Johns Hopkins University. A parent of a child with a rare form of epilepsy, she has served on several patient and caregiver advisory panels for the Patient-Centered Outcomes Research Institute, the US Food and Drug Administration as well as consulting for academic institutions, pharmaceutical companies, and nonprofits. She was the lead technical consultant for the CURE Drug Repurposing Collaboratory (CDRC), a public-private partnership of the Critical Path Institute and the US Food and Drug Administration, where she facilitated implementation of a package of resources to aid data harmonization.
Wednesday, October 8, 2025
2:15 PM - 3:15 PM EST