Co-President
Gaucher Community Alliance
Aviva Rosenberg, JD is the co-founder and co-president of Gaucher Community Alliance (GCA). She is a health care attorney based in Pennsylvania and taught as an adjunct professor at several universities. Aviva practiced health law for over 20 years prior to co-founding GCA. Aviva was diagnosed with Gaucher disease at age 27, following 20 years of symptoms with no answers. One of her 3 sons also has Type I Gaucher disease. Aviva’s passion is educating about genetic diseases and screenings and talking about her personal journey with Gaucher disease, including the need to shorten patients’ diagnostic results. After years of dealing with insurance appeals and learning patients’ struggles with access and coverage, she was motivated to found Gaucher Community Alliance so that patients can share knowledge and experience to help others.
Is it Time for a New Patient Experience Data Section in Product Labeling?
Thursday, October 9, 2025
3:15 PM - 4:15 PM EST